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Girl Makes the Cut for 'Locks of Love'

At first reluctant to cut her hair, Jordan Fideler finds she likes going light-headed—especially when the ponytail goes to a good cause.

My granddaughter, Jordan Fideler, 12, suddenly decided she wanted to donate her hair to Locks of Love.

When her mother first suggested the idea a month ago, Jordan was unwilling to part with her waist-length blond hair. Although she felt sorry for financially disadvantaged children who lost their hair due to illness, she had trouble relating.

A bald child no more existed in Jordan's universe than scenes of tornado-ravaged Joplin, Mo. on television.

Then, last week, she changed her mind. Why?

"I just decided I want to do it," she said in that way children have of cementing their own logic via an authoritative tone of voice.

So off we went to the neighborhood to do the deed.

Although we knew donated hair had to be at least 10 inches long, we didn't know certain other things, such as that salons that participate in Locks of Love often offer discounted or free haircuts.

Stylist Lilia Pulido, a fixture at the Aviation Boulevard salon for the past 20 years, was familiar with the cutting procedure, and whipped out a ruler. She measured the prerequisite 10 inches and suggested 11 or 12 inches, since Jordan would still be assured hair almost to her shoulders.

After wetting my granddaughter's hair, Pulido put it in a ponytail, which she secured with two stretch bands situated about an inch apart.

Placing the scissors midway between the two bands, the stylist explained that the ponytail, once snipped from Jordan's head, would be secured at the top and ready to mail.

One little wrinkle-nose wince from the victim accompanied the lopping off, and it was done.

Afterward, Pulido trimmed Jordan's remaining hair as she had requested, the final result bringing a beaming smile to my granddaughter's face.

"I love it!" Jordan exclaimed to my relief and the stylist's delight. Pulido handed her the excised ponytail, and Jordan displayed it for all to see.

I thought everyone in the place was going to applaud.

Then began our class in Locks of Love 1-A.

Seems the client sends the hair to the company, not the salon. Thus, Jordan was presented with a plastic bag and left the shop, happily swinging the bag of hair at her side like a purse.

Once home, GB (that would be Grandma Blossom) began the research I should have done in the first place. (It's happened before.)

I went to the website and found a good many do's and don'ts suggested by the non-profit company. Preferable length is 12 inches, for example, and hair must be free of bleach, although "colored (dyed) hair" is acceptable.

Now, my granddaughter's hair is neither bleached nor dyed, but I, the relentless investigative reporter, was curious as to coloring products containing peroxide.

Lauren Kukkamaa, communications director at Locks of Love, headquarters in West Palm Beach, Fla., helped me out.

"Any hair that contains bleach will dissolve due to a chemical reaction during the manufacturing process," Kukkamaa said. "The color should not contain any bleach.  Usually this is referring to any lightening agents."

Gray hair may be donated, she said, but only for resale to offset manufacturing costs. (And who ever heard of a gray-haired child, anyway?) Dreadlocks, wigs, falls, hair extensions and synthetic hair are other no-no's.

Permed hair is fine, as is layered hair, so long as it measures at least 10 inches at the longest point.

A single prosthetic hair piece requires six to 10 ponytails, the rep said, and each strand of hair is hand injected into a silicone base up to 150,000 times, a procedure that causes the prostheses to normally retail for from $3,500 to $6,000.

But at Locks of Love, children ages 6 to 21 who are suffering from long-term medical hair loss from "any diagnosis" receive hair prostheses free of charge or on a sliding scale based on financial need, Kukkamaa said.

According to the website, Locks of Love—which began as for-profit enterprise connected with a wig retailer—went non-profit in 1997. The initiative was spearheaded by a retired cardiac nurse, Madonna Coffman, who had endured her daughter's hair loss, as well as her own.

Coffman, who developed alopecia following a hepatitis vaccination, eventually recovered—only to have her 4-year-old daughter come down the same condition 15 years later.

As difficult as it was to deal with her own hair loss, coping with her little girl's baldness was ten times harder for the nurse who was to put all her efforts into the foundation.

One interesting aspect of Locks of Love is that most people assume that hair loss from cancer is the major reason youngsters, especially girls, request prosthetic hair.

In reality, according to Kukkamaa, alopecia—an auto-immune disorder that causes the hair follicles to shut down—is the primary cause of hair loss, affecting some 4.7 million in the U.S. alone.

Cancer constitutes the second highest percentage of hairpiece or prosthesis recipients, she said, with approximately 2,200 children under age 20 diagnosed with brain tumors each year. Whereas chemotherapy may cause long-term hair loss, depending on the length of treatment, radiation can cause permanent hair loss.

Since chemotherapy in normal instances does not result in permanent hair loss, Locks of Love can supply synthetic hair pieces or wigs.

The prostheses are different from synthetic hairpieces because they form a vacuum seal around the head, the representative said, and do not require the use of tape or glue, which might inflame the scalp of an ill person. Children can reapply for a new prosthesis every 18 months

My granddaughter related most to how young girls might suffer in school or during sports if they were thought to be wearing wigs or false hairpieces, much less if they were bald. 

"They might get bullied," said Jordan, who had engaged in several conversations on the subject at home and in class.

Looking at photos of girls and boys who had received prostheses from Locks of Love on the non-profit's website, Jordan saw that the hair looked genuine, the faces of those who had benefited from the hair as radiant as hers had been after her haircut.

"Do I get to see who gets my ponytail?" Jordan asked.

"No," I said. "You have to remember that from six to 10 girls donate ponytails for just one hairpiece."

She seemed disappointed, but agreed that "lots of love" goes into Locks of Love.

For those who wish to apply for a prosthesis, instructions are on the website, as is a form for those wishing to donate hair. 

Once cut, a clean, dry ponytail, secured at the top with a rubber band, should be put in plastic zip-lock bag and placed in a padded envelope, along with the form, and mailed with correct postage to:

Locks of Love
234 Southern Blvd.
West Palm Beach, FL 33405

An acknowledgement of a donation is mailed or emailed to the donor. Email is the fastest method of communication

Financial contributions are espcially welcome, also tax deductible; ponytails do not necessarily qualify as deductions unless deemed so by a tax preparer.

Salons desiring to participate in support of Locks of Love by offering free or discounted haircuts may obtain decals from the non-profit website.

For more information, email info@locksoflove.org or call 561-833-7332.

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Jeff & Melissa Ginsburg, Steve Aspel and Joan Irvine at our May 14th Election Watch Party
Deborah Shepard May 18, 2013 at 11:32 am
Big congrats to you Jeff. Please fill us in (Crowne Plaza Redondo Beach and Marina Hotel andRead More Visitors Bureau) on the hotel shuttle. Also, how do we get Riviera Village's newest hit, Rock N Brew to be called Redondo Beach vs. Torrance??
Joan Irvine May 16, 2013 at 08:08 am
Jeff, I am so pleased that you will be representing the residents of District 1 for the next fourRead More years.
Deborah Shepard May 18, 2013 at 11:56 am
Congrats to the boys and girls baseball/softball teams, showing the Redondo strength of body andRead More mind! Reading all sorts of good things about your teams! Great going players and coaches from the Crowne Plaza Redondo Beach and Marina Hotel staff!
john May 4, 2013 at 09:18 pm
And here I thought I needed to Drive to San Diego to experience craft breweries and bars. Nice job.
sheri patterson April 30, 2013 at 12:19 am
Mary, I read your posts throughout the Measure A campaign. You may want to re-read your posts whenRead More you cast stones about "dividing a city". There wasn't much substantiation to any of your posts-- mostly just attacks on Jim Light. Do Aspel and Ginsburg condone this sort of behavior since you are such a strong voice for them?
Jim Light April 28, 2013 at 03:41 pm
http://www.prado2013.com/ Voters should read this before casting their ballot. Dianne Prado,Read More former District 1 candidate, exposes the electioneering, intimidation and cronyism of this campaign.
Jim Light April 26, 2013 at 11:16 pm
Perhaps we should just turn our heads and let the City Council violate the law. Is that what youRead More would do Mr H? The City Charter is the law of Redondo. The Council chose knowingly to violate it. When the judge found them in violation, the same Council doubled the costs with a frivolous appeal. This time three judges threw it out. Had the Council followed the Charter, there would be zero costs. If you want to hold anyone accountable, it should be those who cast the vote to violate the City Charter and disenfranchise the voters of Redondo. You should not hold me and the over 200 residents who contributed to the lawsuit to uphold the City Charter responsible for the Council's illegal action.
David Mallen May 6, 2013 at 11:28 pm
We are still waiting for someone -- perhaps the author of this post -- to make a coherent,Read More fact-based argument in favor of Mr. Diels. With all due respect, conclusory hopes and dreams of "reform" will not get 'er done in the face of Mr. Diels' voting record as City Councilman. Thankfully, one good thing has come of the author's blog post. The facts and blog posts have vindicated the honesty and integrity of the campaigns run by Dawn Esser and Chris Cagle, against a baseless attack by Mrs. Diels. If I had a magic mand, I would wave it and change the City Charter so that Dawn and Chris could share the position of Treasurer.
David Mallen May 6, 2013 at 11:17 pm
Mr. Azouz: Thank you. I am glad some neighbors find value in what I do, but more importantly IRead More respect the fact that you take the time to do your own homework. If you have expertise in a particular area that can benefit the City, feel free to contact me off line. That goes for anyone. After the election, I have a "big idea" that I want to promote for our City. When Bill Brand and Steve Aspel both agree that my idea is promising, then I think we are on the right track. I'll be curious to learn what the City Manager has to say.
Rocketgerl May 6, 2013 at 10:51 pm
Correction - that's his email. Jimlightforcouncil.com is more fun! Although I'm sure he'd love toRead More hear from you at either address!